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European Journal of Physical and Rehabilitation Medicine 2022 August;58(4):511-9

DOI: 10.23736/S1973-9087.22.07536-0

Copyright © 2022 THE AUTHORS

This is an open access article distributed under the terms of the CC BY-NC 4.0 license which allows users to distribute, remix, adapt and build upon the manuscript, as long as this is not done for commercial purposes, the user gives appropriate credits to the original author(s) and the source (with a link to the formal publication through the relevant DOI), provides a link to the license and indicates if changes were made.

lingua: Inglese

Evidence-based position paper of the UEMS PRM on the role of Physical and Rehabilitation Medicine (PRM) physician in the management of children and adults with spinal dysraphism

Ivana PETRONIC MARKOVIC 1, 2, Dejan NIKOLIC 1, 2 , Minna STAHL 3, Piotr TEDERKO 4, Oksana HDYRYA 5, Stefano NEGRINI 6, 7, Mauro ZAMPOLINI 8, Carlotte KIEKENS 9

1 Faculty of Medicine, University of Belgrade, Belgrade, Serbia; 2 Department of Physical Medicine and Rehabilitation, University Children’s Hospital, Belgrade, Serbia; 3 National Center for Pediatric and Adolescent Pain Management and Research, New Children’s Hospital, HUS, Helsinki, Finland; 4 Department of Rehabilitation, Medical University of Warsaw, Warsaw, Poland; 5 Department of Rehabilitation and Alternative Medicine, Danylo Halytsky Lviv National Medical University, Lviv, Ukraine; 6 La Statale University, Milan, Italy; 7 IRCCS Galeazzi Orthopedic Institute, Milan, Italy; 8 Department of Rehabilitation, San Giovanni Battista Hospital, Foligno, Perugia, Italy; 9 IRCCS, MultiMedica, Milan, Italy



Spinal dysraphism (SD) or spina bifida (SB) is a congenital deformity that results from embryonic neural tube closure failure during fetal development. This evidence-based position paper represents the official position of the European Union through the UEMS PRM Section. This paper aims to evaluate the role of the physical and rehabilitation medicine (PRM) physician and PRM practice for children and adults with spinal dysraphism. A systematic literature review and a consensus procedure involved all European countries delegates represented in the UEMS PRM section through a Delphi process. The systematic literature review is reported together with thirty-two recommendations resulting from the Delphi procedure. The professional role of the PRM physician requires specific expertise in the treatment of patients with SD to plan, lead and monitor the rehabilitation process in an interdisciplinary setting and to participate in the assessment of the needs of these patients in the transitional phase from childhood to adulthood, with particular attention to the activity limitation and participation restriction.


KEY WORDS: Spinal dysraphism; Rehabilitation; Physical and rehabilitation medicine; Guideline Adherence; Consensus

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