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Indexed/Abstracted in: CINAHL, Current Contents/Clinical Medicine, EMBASE, PubMed/MEDLINE, Science Citation Index Expanded (SciSearch), Scopus
Impact Factor 2,063
Online ISSN 1973-9095
Amandine RAPIN 1, 2, Moustapha DRAMÉ 2, Damien JOLLY 2, Jean NOVELLA 2, Rachid MAHMOUDI 2, Mathilde TOUSSAINT-THORIN 1, François C. BOYER 1, 2
1 Unit of Medicine and Rehabilitation, Health Pole Sébastopol Hospital, CHU Reims, Reims Cedex, France; 2 Reims Champagne Ardenne University, Reims Cedex, France
BACKGROUND: Quality of life is a subjective point of view of the patient. Its measurement is complex, but useful to personalize interventions and to evaluate the effect of care, particularly in physical medicine.
AIM: To determine the psychometric properties of the Duke Health Profile (DHP) in neuromuscular disease. This instrument was chosen for its excellent acceptability and its ability to evaluate ten dimensions in a short administration.
DESIGN: Prospective multicentre study.
SETTING: Neuromuscular patients in centers in Reims, Dijon and Besancon.
POPULATION: Patients over 18 years with neuromuscular disorders.
METHODS: Successive inclusion between 2002 and 2005; DHP administration on two occasions, 15 days apart; collection of socio-demographic data. Statistical analyses using SAS SOFTWARE 9.3.
RESULTS: One hundred thirty-nine patients were included. The acceptability of the DHP was excellent. The disability dimension showed marked ceiling effect. Reliability was acceptable (Cronbach=0.54-0.73, except for the social health dimension [0.40], ICC=0.55-0.83). The anxiety and depression dimensions had discriminant properties in distinguishing patients with different functional status.
CONCLUSION: The DHP is suitable and valid for patients with neuromuscular disease, with some reservations for the social health and disability dimensions.
CLINICAL REHABILITATION IMPACT: This tool can be used in daily clinical practice and in research.