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GAZZETTA MEDICA ITALIANA ARCHIVIO PER LE SCIENZE MEDICHE

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Gazzetta Medica Italiana Archivio per le Scienze Mediche 2013 September;172(9):705-11

Copyright © 2013 EDIZIONI MINERVA MEDICA

language: English

Quality of life, affect regulation and resilience in adult patients with cystic fibrosis

Epifanio M. F. 1, Genna V. 1, Di Marco S. 2, Furnari M. L. 2, Pardo F. 2, Collura M. 2, Roccella M. 1, La Grutta S. 1

1 Psychology Department University of Palermo, Palermo, Italy; 2 Regional Center of Cystic Fibrosis UO II Pediatrics, A.R.N.A.S. Civico, Palermo, Italy


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Aim: We believe that the Quality of life (QoL) in patients with Cystic Fibrosis (CF), related to recent life-expectancy increasing, should be studied adding the role of affect regulation. This cross-sectional study examines 1) the interrelationships between QoL, affect regulation and resilience in adult patients with CF, and 2) the interrelationships between these psychological aspects and medical indexes.
Methods: Forty adult patients (age: 18+) afferent Palermo Regional Center of CF completed three questionnaires: Cystic Fibrosis Quality Of Life (CFQoL), Toronto Alexithymia Scale (TAS-20) and Resilience Scale (RS). Clinical and socio-demographic data were also collected for each patient.
Results: Resilience capacity is significantly correlated with QoL and with some CFQoL domains like social and emotive functioning, interpersonal relations and career preoccupations. There is also an association between resilience capacity and affect regulation. The study confirms the association between some medical indexes (like BMI, FEV1) and QoL.
Conclusion: The assessment of psychological aspects contributes to identify psychological functioning at risk for physical and psychological health in CF patients. This approach contributes also to implementation of a holistic CF care model.

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