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CURRENT ISSUEEUROPEAN JOURNAL OF PHYSICAL AND REHABILITATION MEDICINE

A Journal on Physical Medicine and Rehabilitation after Pathological Events


Official Journal of the Italian Society of Physical and Rehabilitation Medicine (SIMFER), European Society of Physical and Rehabilitation Medicine (ESPRM), European Union of Medical Specialists - Physical and Rehabilitation Medicine Section (UEMS-PRM), Mediterranean Forum of Physical and Rehabilitation Medicine (MFPRM), Hellenic Society of Physical and Rehabilitation Medicine (EEFIAP)
In association with International Society of Physical and Rehabilitation Medicine (ISPRM)
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ORIGINAL ARTICLES  


European Journal of Physical and Rehabilitation Medicine 2016 February;52(1):57-64

language: English

Psychometric properties of the Duke Health Profile in a neuromuscular disease population

Amandine RAPIN 1, 2, Moustapha DRAMÉ 2, Damien JOLLY 2, Jean NOVELLA 2, Rachid MAHMOUDI 2, Mathilde TOUSSAINT-THORIN 1, François C. BOYER 1, 2

1 Unit of Medicine and Rehabilitation, Health Pole Sébastopol Hospital, CHU Reims, Reims Cedex, France; 2 Reims Champagne Ardenne University, Reims Cedex, France


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BACKGROUND: Quality of life is a subjective point of view of the patient. Its measurement is complex, but useful to personalize interventions and to evaluate the effect of care, particularly in physical medicine.
AIM: To determine the psychometric properties of the Duke Health Profile (DHP) in neuromuscular disease. This instrument was chosen for its excellent acceptability and its ability to evaluate ten dimensions in a short administration.
DESIGN: Prospective multicentre study.
SETTING: Neuromuscular patients in centers in Reims, Dijon and Besancon.
POPULATION: Patients over 18 years with neuromuscular disorders.
METHODS: Successive inclusion between 2002 and 2005; DHP administration on two occasions, 15 days apart; collection of socio-demographic data. Statistical analyses using SAS SOFTWARE 9.3.
RESULTS: One hundred thirty-nine patients were included. The acceptability of the DHP was excellent. The disability dimension showed marked ceiling effect. Reliability was acceptable (Cronbach=0.54-0.73, except for the social health dimension [0.40], ICC=0.55-0.83). The anxiety and depression dimensions had discriminant properties in distinguishing patients with different functional status.
CONCLUSION: The DHP is suitable and valid for patients with neuromuscular disease, with some reservations for the social health and disability dimensions.
CLINICAL REHABILITATION IMPACT: This tool can be used in daily clinical practice and in research.

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